• Als Spam markieren
• Beitrag melden

• 
  Diese Gruppe Alles

• Archiv
• RSS-Feeds

• Kontakt
• Hilfe
• Impressum
• Datenschutz

Re: Ashley's Story

>
>     You have made a variety of medical statements in your post which are
> inconsistent with Type 1 and Type 2 diabetes as I know them.    I'm not
> trying to be sarcastic or even ironic when replying at a time in which
> Ashley's condition must be devastating to you.   However,  I am afraid
> that
> your research has not been deep enough and/or you have been too anxious
> and
> too intent in looking for "some way out".

Actually, you are right. I typed in Type II, instead of Type I. I meant to
say Type I. It must have been the exhausting night. Thanks for your
response. I really appreciate you taing the time.

>
> Some remarks from my side   (Research Engineer with diabetes,  not a
> medical
> person)
>
> 1.  Ashley is exhibiting symptoms quite typical of a Type 1  (Type I)
> diabetic.
>
> Although thirst,  excessive urination and the like are symptoms of
> developing diabetes,   the acceleration effect of prednisone could easily
> have masked them.
>
> FWIW,  I did not experience any of the classical physical symptoms other
> than blurred vision and, of course, high blood sugars.
>
> 2.  A juvenile Type 1 diabetic can go from "no physical symptoms" and
> normal
> blood sugar to sky-high sugars and DKA coma in a week.
>
> As a parent of a suspected Type 1 diabetic child,  you must be aware of
> the
> symptoms of DKA.   Please read and try to understand these medical papers:
>
> http://www.ispad.org/clin-2.htm
>
> http://www.emedicine.com/EMERG/topic373.htm
>
> Please memorize the symptoms  and/or post them in view somewhere.
>
> The first symptom of approaching DKA is high blood sugar.   Since DKA can
> cause rapid-onset death,  please,  please, please continue to monitor her
> blood sugar.

We do monitor her blood sugar level twice a day, everyday. Thanks for the
wonderful links.
>
> Pay special attention to her blood sugar at 2 hours after a meal.   A
> non-diabetic would be expected to be at 5 mmol/L  or lower at that time.
>
> It is not clear to me why you "weaned" her from insulin injections.   The
> first treatment for DKA is insulin injection.  Daily insulin injections
> are
> a preventative against DKA.
>
The doctor told us to reduce the dosage of insulin if her sugar level
consistently drops, and it did. I'll check with the nurse.

> 3.  Type 1 diabetes is genetically induced and mildly hereditary.   It is
> an
> autoimmune disease triggered by "something or other".
>
> "Something or other" can be a variety of stress factors,  ranging from a
> virus to a food allergy to personal stress.     A Type 1 diabetic can have
> no known diabetic relatives of any Type   (like me, for instance),   or be
> part of a family in which every child and grandchild of a T1 is also T1.
>
> In contrast,  Type 2   (Type II) diabetes is almost always strongly
> hereditary.
>
> Sorry,  but your statement:
>
> ". . .     No one from Ashley's family (from both of her parents' sides)
> is
> diabetic. Ashley's illness cannot be hereditary. . . ."
>
> is totally in error.
>
> There is no known,  reliable preventative therapy for approaching Type 1
> diabetes.   There is no "restorative" therapy (transplant from sibling)
> There is no way to protect other family members.
>
> Type 1 is an autoimmune disease.  Researchers are experimenting with
> immune
> suppressive drug therapies but there is nothing available outside of the
> clinical trials.
>
> 4.  Prednisone unmasks developing diabetes of any type.    It "orders"
our
> livers to produce extra glucose.    If our beta cells have been damaged by
> some form of diabetes,   they cannot handle the extra glucose and our
> blood
> sugars rise.
>
> There is a theory that the extra work load produced by the release of
> extra
> sugars can accelerate an existing diabetic beta cell destruction
> mechanism.
> Therefore,  in theory, prednisone can accelerate the arrival of developing
> diabetes.   That is not the same as "induce" or "cause"
diabetes.
>
> 4.  An HbA1c of 0.064 is not "slightly elevated"   It  is high, and
> consistent with approaching full-blown diabetes.
>
> My HbA1c has not been that high since I switched from old-fashioned
> insulins to modern insulins several years ago.
>
> (Think about the above statement if your doctor prescribes
"old-fashioned"
> insulins when and if the time comes.   The modern insulins:    Humalog,
> Novolog,  Apidra;   Lantus and Levemir  are much easier to use.    Easier
> to
> use means better control which means lower chance of diabetic
> complications.)
>
> The best study of HbA1c  I have seen is the U.S. Third National Health and
> Nutrition Examination Survey (NHANES) which reports an average of 5.0% for
> non-diabetics.    NHANES is a large study with enough subjects to produce
> an
> expectation of accuracy.
>
> (Note that  most of us use the percentage version of HbA1c,  i.e.  6.4%)
>
> 5.  Exercise helps control blood sugar in any and all diabetics.
>
>  When I was in my honeymoon stage,   the only way I had available to knock
> down a high blood sugar was riding a stationary bike.   A 4-minute mile
> would knock my sugar down by an average of 1.1 mmol/L.
>
> 6.  Injection,  either by syringe,  pen or insulin pump is the most
> reliable
> and accurate method of delivering insulin.     There is an experimental
> "inhaled" insulin being tested.     I cannot imagine using it on either a
> child,  or any Type 1 diabetic.
>
> Please investigate the costs and capabilities of an insulin pump.   It is
> the most powerful and reliable insulin therapy available right now.
>
We are in the process of procuring one

> Most insulin therapies for children are "second-best" therapies,  used
> because the child has limited understanding and is unavailable to the
> parents during much of the school day.     Pump therapy is capable of
> sidestepping these limitations.
>
> 7.  "is it possible that she was rashly misdiagnosed?".       I cannot
> believe that  (except for the fact that Type II is being mentioned so
> often
> when applied to a child with clear Type 1 symptoms).    Non-diabetics do
> not
> experience blood sugars much above 8 for any reason at any time.    Two
> readings of 11 or more are considered sufficient for the diagnosis by most
> docs.
>
> I commend whoever put Ashley into Emergency care when she spiked to 18
> mmol/L.    She was in serious danger at the time.
>
> The gentleman who put together this web site
>
> http://www.rajeun.net/gtt.html#Diabetes and Hypoglycemia
>
> http://tinyurl.com/c5xqo
>
> has harvested responsible medical citations of blood glucose readings for
> non-diabetic and diabetics when stressed by glucose ingestion.
>
> Note that he uses the U.S. notation of mg/dL.    ( 18 mg/dL  = 1.0
> mmol/L.)
> Ashley's 18-20 mmol/L correspond to U.S. blood sugars of 324 - 360 mg/dL.
>
> Mr. Toussier is not a doctor but, as I stated,  he quotes responsible
> medical sources.\
>
> Good luck and please,  please test her blood sugars frequently.   DKA is
> dangerous.
>
> Regards
>  Old Al
>
Thanks a lot. Take care.
>
>

Antworten